Braxton will be having surgery on Monday. He will have a peg tube placed. I'm scared, excited, nervous, anxious, just about every emotion possible. It's a good thing I just know it. The NG tube is such a pain in the butt. It's a tiny torture device. I am happy to see it go. Ready [...]
"find beauty in all things"
"It gives me hope"
"I will always dream big for my boy but for now I am going to help him start small"
Please refer to this link to learn more about 2q24.3 microdeletion. I have read this packet of "information" more times than I could say. Each time I hope to find more information. Each time I come up with nothing to add to what I already know. I say "information" because it raises more questions than it [...]
"Every child is going to be different. This we all know. What we don’t know is what has happened over the life span of one person with this unique syndrome. I want Braxton to be that child that can offer some sort of hope."
"I need an outlet. An outlet to speak my mind and let it all out."