Wow! I hadn't realized how long it had been since my last post until I received a couple emails from other parents. I would like to start with an update on my boy. He's doing very well! We have gained pretty good control over his seizures and he is making great progress in therapy. He … Continue reading Happy Changes
Never take for granted the little things. Every new day is a miracle.
I love Braxton with all my heart but it’s not fair to him if I were to say I wouldn’t change a thing about him. It’s not fair to him all of the appointments and all of the seizures. None of this is “fair” to him.
I’m late posting. I could say I have been busy but anyone that knows me could tell you I’ve had plenty of time. I struggle to turn my thoughts into something people can understand. Sharing enough but not too much. I’m going to let photos tell as much of the story as possible. So here … Continue reading Surgery
Braxton will be having surgery on Monday. He will have a peg tube placed. I'm scared, excited, nervous, anxious, just about every emotion possible. It's a good thing I just know it. The NG tube is such a pain in the butt. It's a tiny torture device. I am happy to see it go. Ready … Continue reading A big day!
"I will always dream big for my boy but for now I am going to help him start small"
"Every child is going to be different. This we all know. What we don’t know is what has happened over the life span of one person with this unique syndrome. I want Braxton to be that child that can offer some sort of hope."